Experiences of and Challenges Faced by Mothers Raising Children with Down Syndrome: A Qualitative Study

Abstract

This qualitative study explored the experiences of and challenges faced by mothers raising a child with Down syndrome The study group consisted of mothers raising children with Down syndrome. The qualitative data were collected between July 30, 2025, and September 30, 2025. To identify these mothers’ experiences and challenges, data were collected through a focus group interview with 15 participants using socio-demographic data collection and semi-structured interview forms. A descriptive thematic approach was used for data analysis, and coding and analysis were carried out using the MAXQDA qualitative data analysis program. Three main themes emerged from the analysis: emotional responsibility, social burden, and family responsibility. The findings suggest that mothers’ experiences of and challenges in raising a child with Down syndrome affected their lives in several ways. Increasing the public awareness of the bio-psychosocial needs of mothers and their children and developing family-focused interventions and educational programs for children with Down syndrome could help reduce the difficulties these mothers face.